Survey to help research

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Hedgehog
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Registriert: Di 15. Aug 2017, 11:47

Survey to help research

Beitrag von Hedgehog »

http://haemochromatosis.org.uk/ If you speak English, you could do this survey which is being done by the Haemochromatosis Society. It is to help with research into haemochromatosis. It is a bit annoying, because you have to do it online in one sitting, and it does take time and thought, but the more responses they get, the more useful it will be and the more people will potentially be helped as a result. (I needed an hour and a half, though you could do it in less if you did not want to write in the spaces for your own comments but just answer the questions). I am writing this in English because the survey is in English! They want responses from anybody with any of the genetic mutations related to the condition, with or without symptoms. So family members can help too, if they have a mutation but no problems.